Four years after TikToker Brooke Eby was diagnosed with amyotrophic lateral sclerosis (ALS), she died at the age of 37, according to The ALS Network, an organization she had previously partnered with.

“The ALS Network joins the ALS community in mourning the passing of Brooke Eby,” the organization shared in an Oct. 1 statement, “an extraordinary advocate, storyteller, community builder, and friend whose honesty, humor and determination changed how countless people understood ALS.”

The group emphasized how Eby—known online as Limpbroozkit—used her social media to document her ALS journey with tongue-in-cheek comedy, which helped educate her viewers on the condition also known as Lou Gehrig's disease.

“She brought humor into incredibly difficult moments, spoke with fearless honesty, and created connection where it was desperately needed,” ALS Network President and CEO Sheri Strahl added in the organization’s statement. “We are heartbroken by her passing and profoundly grateful that we had the privilege of knowing her, working alongside her, and celebrating her.”

Strahl added, “Brooke’s impact will live on in every person she reached and throughout the community she created.”

As for why Eby chose to use humor as her way of connecting with audiences? 

“Everyone was a lot more comfortable with my situation when I was laughing,” she wrote in a January 2025 essay published in People, “and that came back around to make me feel more comfortable too.”

While Eby had documented her symptoms since 2022, the illness’ toll on her body had rapidly progressed within the last year, prompting her to have a feeding tube installed in June 2025.

In January, the TikToker shared she had begun to have difficulty speaking and swallowing, which was also the topic of one her last social media posts.

“I’m not ready to give up talking,” she said in a Sept. 3 TikTok. “Also, my head and neck have to be in the exact right position for me to even get any words to come out. I can’t tell if my breath isn’t strong enough to fight the breathing machine anymore or if it’s just my lips are weak.”

However, with her signature wit, Eby quipped, “But you know what they say, loose lips sink
 Brooke’s will to live.”

But before her death, the influencer reflected on what she hoped part of her legacy would be.

“My TikTok presence will live on after I die,” she continued in her People essay. “I hope it serves as a visual diary for anyone who gets diagnosed and needs a guide.”Â